NIAID/NCICAS: 1 1 Caretaker’s Expectations Regarding the Management of Pediatric Asthma Scale (CE) Holden, G., Wade, S., Mitchell, H., Ewart, C., Islam, S., &, The National Cooperative Inner-City Asthma Study Group (1998). Contact first author at: gary.holden@nyu.edu Published article for citation: Holden, G., Wade, S., Mitchell, H., Ewart, C., Islam, S. (1998). Caretaker expectations and the management of pediatric asthma in the inner-city: A scale development study. Social Work Research, 22, 51-59. The CE was also selected for inclusion the Health and Psychosocial Instruments Database. NIAID/NCICAS: 2 2 Subject ID # ___ ___ ___ ___ This section includes 15 questions about (child's name___________________ ) asthma and what you might do about it. There are no right answers to these questions. We know that people have very different ideas about these ways that you might try to help your child's asthma. We want to find out how helpful you think some things would be, how confident you are that you would be able to do them, and how difficult they would be for you to do, during the next year. For example, if I asked you: How much do you think it will help (child's name______________________), to have her/him lie down and rest at the first signs of an asthma attack? 1 2 3 4 5 6 7 8 9 | | | | | | | | | Not at all A little Somewhat Very Extremely If you think that having (child's name____________________ ) lie down and rest at the first signs of an asthma attack will not help at all in preventing the attack from getting worse, you would just tell me "1" 'not at all'. If you thought that having (child's name____________________ ) lie down would be more than 'somewhat' helpful, but not 'very' helpful then you would tell me "6". Use any number from 1 through 9 that best describes what you think. The words under the line on your card are there just to help you pick a number that represents what you think. You don't have to pick a number with a word underneath it. Is this clear? I would like you to take a minute to think about the next twelve months - the things that you know will happen, the things that you have planned and would like to happen, etc. As we go through the questions remember that I want you to answer them by saying what you think you will be able to do and what will happen regarding (child's name _____________________ ) asthma during the next year. Interviewer: Pause for a 1 minute and then hand subject the answer sheet and explain. NIAID/NCICAS: 3 3 In the first three questions we would like you to think about the medical appointments that (child's name __________ )will have for treatment of their asthma, during the next year. Interviewer: Remember that the answer sheet only has the modifiers [ not at all, a little, etc. ] on it. You may need to remind subjects that you are asking about helpfulness, difficulty, or confidence. You may also have to remind them that they can use the even numbers which do not have a specific phrase attached. 1. How much do you think it will help (child's name____________ ) asthma to bring her/him to these medical appointments? _____ 2. How difficult will it be for you to get (child's name_____________ ) to these medical appointments? _____ 3. How confident are you that you can get (child's name_____________ ) to these medical appointments? _____ In the next three questions we would like you to think about keeping (child's name__________ ) away from the things that trigger their asthma attacks, during the next year. The 'triggers' we are talking about include anything that tends to bring on an attack for (child's name______________ ), that you might be able to do something about. We mean triggers like: lint, dust, animals, smoke from cigars or cigarettes, colds, weather changes, exercise, or the child's getting emotionally upset. 4. How much do you think it will help (child's name____________ ) asthma if you make her/him avoid these triggers? _____ 5. How difficult will it be for you to make (child's name____________ ) avoid these triggers? _____ 6. How confident are you that you will be able to make (child's name______________ ) avoid these triggers? _____ NIAID/NCICAS: 4 4 In the next three questions, we would like you to think about getting (child's name_____________ ) to exactly follow all of the regular treatments prescribed by your doctor, during the next year. The treatments we are asking about include how and when to have (child's name_______________ ) take the pills and or use the inhaler, on a regular basis. We will ask you later about the things the doctor has told you to do when (child's name_______________ ) is having an attack. 7. How much do you think it will help (child's name____________ ) asthma, if you have her/him follow the regular treatments exactly? _____ 8. How difficult will it be for you to get (child's name___________ ) to follow the regular treatments exactly? _____ 9. How confident are you that you will be able to get (child's name____________ ) to follow the regular treatments exactly? _____ In the next three questions we would like you to think about recognizing the first signs that (child's name_________________________ ) is about to have an asthma attack, during the next year. We mean signs like tightness in the chest, shortness of breath, coughing or wheezing. 10. How much do you think it will help (child's name_____________ ) asthma if you recognize the first signs of an attack? _____ 11. How difficult will it be for you to recognize the first signs of an attack ? _____ 12. How confident are you that you will be able to recognize the first signs of an attack? _____ NIAID/NCICAS: 5 5 In the next three questions we would like you to think about getting (child's name_____________ ) to follow your doctor's instructions exactly, when she/he is having an attack, during the next year. 13. How much will it help (child's name______________ ) asthma, if you get her/him to follow the doctor's instructions exactly, when she/he is having an attack? _____ 14. How difficult will it be to get (child's name________________ ) to follow the doctor's instructions exactly when she/he is having an attack? _____ 15. How confident are you that you will be able to get (child's name______________ ) to follow the doctor's instructions exactly when he/she is having an attack? _____